Whatever

I met with my cardiologist this week.  My friend Gina came with me and said he looked like a cross between my 12 year old son Aidan and Pete Yorn (singer/songwriter for those who may not know). Anyway he’s cute in a way that my high school boyfriend was cute, but smarter…much smarter…and better dressed. He’s probably a better kisser too. Oh, sorry. Anyway, he said that these tests — echocardiograms and such — are open to much interpretation by the reader.  He said that he looked at my last 2 tests side by side and with his trained eye couldn’t see a big difference.  This test had said my ejection fraction was 45%…the last one said 55%. Anything below 50% is a problem in their book.

Now it is really just a mater of the heart guy meeting with the onco girl and deciding the best course of action for me– the cancer lady. They must decide which effects outweigh which benefits, etc. etc.

Whatever.

That is my new answer for everything.  When people ask how I am, that’s what I say.

“I am Whatever.”  

No one really knows yet how all this chemo effects your heart.  Herceptin is a relatively new drug and they do realize that it is highly heart toxic, they aren’t quite sure what long lasting effects it will have on the heart.  So it’s kind of a guessing game at this point.  My cancer has not yet (and hopefully will not ever) metastasized so they could take me off the Herceptin.  But if it does show up in my bones or liver or lungs then they will have to put me back on it.

Cardio-boy did say that if the oncologist decides to put me back on Herceptin then he wants me to take a Beta-Blocker for my heart.  It’s a heart med that I guess the whole world is on in some form or another.  Yup, just keep giving me pills.  A year ago I wouldn’t even take an Advil, now I am a walking pharmacy.

Whatever.

No sense worrying about it now.  Decisions will be made on December 17th.  Until then, I will take my COQ-10 which is a supplement that I had read about which boosts heart function (although the heart  doctors don’t recommend it, my oncologist told me it couldn’t hurt).  I am signed up for a 5 mile race on Thanksgiving morning and a 5k on December 13th…so my heart is going to have to hold out until after those races.

May I just say too that I am so thankful to have been invited to Blog on the mother’s with cancer site.  I have been corresponding with these women from all over the map; and they have some wonderful insights.

Posted in breast cancer, chf, heart function, herceptin, Uncategorized | Tagged | Leave a comment

My Broken Heart

I hadn’t expected the news I was given today at what I assumed was going to be a routine visit with my oncologist at Dana Farber before my herceptin treatment.  I knew that I had had an echocardiogram last week but since I had heard no news I figured the numbers were good.

 And yet there was a nagging suspicion yesterday as I drove in the car.  I was getting that fluttery heart thing I had gotten before they took me off chemo last time–just sligthly though.  I thought it was  possibly a little anxiety or maybe dehydration –my water intake had been low.  So today when Dr. Anderson told me that my left ventrical ejection fraction had dropped to 45, and that they had to stop my herceptin treatment immediately I was shocked but not completely surprised.

I remember the first time I heard about the drug, herceptin. It was the week between Christmas and New Years and I was trying to make an appointment for a second opinion at Brigham and Woman’s hospital after being diagnosed at Winchester.  I was having a hard time getting through to the docs at the Brigham  and knew my time was ticking so I drove to Winchester to pick up my records which I was going to hand deliver to Dr. Christian.  As I sat in the parking lot and read the pathology report, the reality of my situation finally hit home.  I was her2/neu positive.  This I knew from my many late-night-internet-breast-cancer-information-searching-sessions was not good news.  The fact that I was her2/neu positive meant my cancer was very aggressive and the chance of recurrence was greatly increased.  When I got home, I called the nurse at Winchester to get clarification.  She said, “yes, you are her2/neu positive but thankfully we now have the drug herceptin that specifically battles that form of breast cancer.”

It didn’t make me feel that much better. I researched the drug.  Herceptin which came into play about 10 years ago was the newest form of chemo –targeted therapy.  As opposed to the other forms of chemo that hit all fast growing cells and make you lose your hair and get mouth sores and throw up, herceptin only seeks and destroys cancer cells allowing you to live a normal life while on the therapy.  Still, the side effects were present and the thought of those and the fact that I had to have infusions every 3 weeks for a full year made me less than thrilled to have to be taking the drug.

But after AC and Taxol, herceptin was a breeze.  I started to look forward to my treatments because they didn’t make me sick and I knew that this drug was keeping those nasty her2/neu cancer cells from reappearing in my body.  After every infusion I felt stronger; armed for battle with a body full of herceptin ready to fight.

I have known all along that the herceptin, especially when preceeded by AC is very heart toxic.  I have been through this once before.  But I was really hoping it was the Taxol that messed up my heart last time.  The problem now is that they can only stop and re-start herceptin so many times.  Actually she told me that they will do it twice.  This is my second time.  For now I am off herceptin for 4 weeks.  After that time they will re-test my heart and then Dr. Anderson, along with my Cardiologist (Doogie Howser) and myself will decide what to do.  Dr. Anderson thinks that this may be it.  That they may not be able to give me any more herceptin.  The risk that of my heart not returning to normal function gets greater with each incident.  They are never quite sure which time will be the time that my heart just continues on the bad path to congestive heart failure. 

I do not want to stop the herceptin.  I do not want to give those pesky cancer cells any chance to re-group.  This scares me.  Congestive heart failure scares me. But I have faced scary things all year; so what. Because,on the other side of this, I ran a race last week and came in 5th in my age group.  I did this not knowing about my bad heart.  Who knows, maybe if my heart was better I would have come in first. So I will continue to run and pretend I don’t know. And once again….we will wait and see.

Posted in breast cancer, heart, herceptin, mastectomy, Uncategorized | Tagged | 5 Comments

Goals

I have been in the doldrums. I won’t call it depression, it’s more a state of “oh well”. Because of this,I have been having trouble lately feeling inspired enough to write in this blog.  I know that there is a responsibility to post everyday, but I am in a semi-holding pattern these days and therefore have nothing very interesting to write about.  I won’t have my next surgery until January 7th so between now and then I just have my Herceptin infusions every 3 weeks and take my daily dose of Tamoxifen.  It’s all quite boring, frankly. There are a few things that are bothering me though and I vowed this morning to change them.

Despite my return to running daily and back to the gym in the wee hours of the morning I am still gaining weight. This is really starting to piss me off. Before getting breast cancer I had worked very hard to get myself to a point where I was comfortable in the clothes I wore.  This is no longer the case thanks to surgical down-time, comfort-food eating after chemo and the tamoxifen-induced menopause that has turned my muscle into fat and made my metabolism come to a screeching halt.  I can deal with my new curly  dark hair and I can deal with the fact that I have one breast, I can not deal with the fact that every single pair of pants I own does not fit me. 

I want to go back to work.  I need to go back to work. But something is holding me back.  I say I have no time and I don’t want to start anything before the surgery, but I am not even believing myself anymore. I have had offers at restaurants to waitress as well as a full-time sales job. I turned my back on both of these with the excuse that I don’t have time or energy at this point.

My house is a disaster and my kids schedules are out of control.  I am supposed to be running a craft fair in less than a month and I am completely disorganized. I keep blaming the chemo saying it has screwed up my brain leaving it impossible to handle more than one thought or task at a time.  My days of multi-tasking seem to be over.  Is it the chemo? Or have I just gotten lazy? Most days I feel the need to actually shake my head like a cartoon character to jog my brain back into place.  Seriously, if I had any hair right now I would rip it out of my head.

Last week I went to a talk at my son’s High School called “Rachel’s Challenge”. It was a seminar on Columbine, Rachel being one of the first victims that day, and the woman spoke about helping others and kindness and racism.  She also put out a challenge to the audience, telling the students to write down their goals as this girl Rachel had done; to put in writing what you want to do with your life.  So I have decided today that I will put my goals out to you all.  That way you can all hold me acountable when I start to slip. Here they are:

This year I will:

1. Stop procrastinating and blaming my cancer for my messy house and lack of organization.

2. Get back on the Zone and lose 15 lbs.

3. Publish my essays and turn them into a book that will inspire and help others.

4. Get a job.

Well, that’s it, wish me luck, now I have to go clean my house!

Posted in breast cancer, goals, menopause, tamoxifen, Uncategorized, weight gain | Tagged | 3 Comments

Retraction

I realized the other day that my last post, for those that don’t know me, may have sounded a little like I was looking for sympathy.  This whole ‘blogging’ thing is a little disconcerting since I am now putting myself and my writing out to the world instead of just the group of e-mail recipients it once was. I certainly did not mean “oh look, poor me, I still have cancer” it was just a jumping off point from my daughter’s comment in an attempt to explain how being diagnosed with cancer changes you forever.

That being said I also realized that it must be a similar feeling for those with heart disease.  I suppose if you live with a compromised heart you would always be worrying about having a heart attack or be concerned when you overexert yourself. Actually any chronic disease would be the same.  Those with asthma, I am sure, always think about it and worry about having an attack. 

So I guess I have just entered into a world where thousands of people have already resided.  So many deal daily with their own pain or disease, sometimes having to make compromises and adjustments. I am no different, just newly aware. This is one more gift I can say cancer has given me — a new understanding and appreciation for others suffering.

Also, for those of you wondering; the 2 cysts under my arm were just cysts, nothing else. Yippee. Although I ripped the stitches while swimming last week and got hollered at by Dr. Christian’s assistant, Charlotte. “YOU WENT SWIMMING?!”  Well, in my defense, the doctor told me to wait a week, and I did wait a week…to the day.  Oh well, there is nothing they can do now, the nurse said it’s just going to take a lot longer to heal and I will have a nasty scar. That’s fine —  I am racking up quite an array of cool battle scars these days.

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Mommy Doesn’t Have Cancer Anymore

I glanced down at the clock in my car, saw that it said 5:10, added the five minutes in my head to learn the actual time of 5:15, and announced with bravado to the 4 twelve year old boys crammed in the backseat,

“We are now officially late for practice,”

“Great.” said my son, Aidan, “Coach’ll make us run laps.”

“Tell him it’s your mother’s fault. I’ll take the blame.”

“Yah, I could play the cancer card,” he said, feeling like a big man in front of his soccer teammates.

” No, that’s not necessary,” I said, “besides…”

“Besides,” said my 9 -year -old daughter from the passenger seat, “She doesn’t even have cancer anymore.”

She said it as casually as if she had blown a soap bubble at me through a two -sided wand. I let the statement hang in the air a few seconds , opened my mouth, and shut it again. I decided not to correct her.  Why not let her believe that?

See the truth is a little harder to explain.  Most people don’t understand it, how could a little girl? The truth is that I will always have cancer. Just because my hair is back and I can run again and feel better doesn’t mean the cancer is gone. It just means,that my hair is back and I can run again and I feel better. The problem with breast cancer is that they are never sure if it is ever gone; especially when it is her2neu positive.I will never ever NOT have cancer.  It doesn’t go away.  It’s the reason they give you all that nasty chemo; because they can never be sure if one little cancer cell didn’t get loose and is festering in some deep dark bodily crevice . Those little cancer cells are insipid. (Isn’t insipid a great word?  The word itself is so…well, insipid). They lurk. They hide.  They multiply.

The question is not IF the cancer will come back but actually WHEN it will come back.  I hear so often of women reaching their 5 year survivor-ship goal only to have the cancer recur the next year.  Seven seems to be the number I hear a lot. It’s in that seventh year that the cancer rears it’s ugly head in either another breast or in the bones or in the brain. Just when you think you have beat it. Stages don’t really seem to matter either.  I have read stories of woman with stage 1 breast cancer with recurences in a year in the brain. And yes, I have heard wonderful stories like the woman at Walden who is a 12 year survivor and others who have lead full wonderful lives. But even 12 years out, I am sure that woman thinks about cancer every time she has an ache or pain and every time she has a fever.

See this is something I never knew before. I always assumed, like my daughter, and I am sure a majority of well-intentioned people that you got cancer and either a) you died from it, or b) they cured you. I never understood the third option c) that they treat you, you recover from the treatment, and then live your life with the continuous nagging thought that some day it will return. I never understood how cancer messes with your head. The doctors will check me periodically to see if there is cancer in certain places that they can see; like my other breast or my cervix, but they won’t know whether or not the cancer has returned to other spots in my body until I become symptomatic.  If my bones start to hurt they will give me a bone scan or if I lose my balance and forget pertinent information then they will give me a brain scan. Otherwise, I am just left to my own resources.  Left to years full of endless dark nights of wondering and worrying.

There was a listing in Parade Magazine this past Sunday of the 10 things to do for someone you know who has cancer. One of them mentioned a couple on their way into a chemotherapy session.  This man and wife met their pastor who asked the woman how she was doing, to which the husband replied, “She’s doing great. She is going to be fine.”  The wife turned to her husband and told him that that was very easy for him to say since at night he would roll over and go to sleep while she laid awake in the dark worrying about all the things that were not “fine.”

So I must get used to the fact that I will always have cancer. I look forward to a time, and  have read that this will happen, when there will be whole days in my future where I won’t even think about that fact.  My cancer may not recur for many years, or it may be next year. This I do not know.  For now I will have to let my daughter think that I do not have cancer any more because it makes her feel better.  As a matter of fact, It makes everyone feel better.

Posted in breast cancer, breast caner, cancer, chemo, her2neu, life, mom with cancer, recovery, Uncategorized | 4 Comments

The World’s on Fire

I am trying to figure something out.  Do the trees around here seem more vibrant this Fall? I am not sure if it is because of all the rain we got in the summer or the fact that my sunglasses have an orange-tinted lens but this has been one of the most beautiful foliage seasons in New England that I can remember.  I find myself saying “wow” out loud several times a day as I go about my business. I keep pointing out specific trees to my kids, “look at that one, it’s on fire!” “There’s another one!” 

But I wonder if it is something else entirely.  I wonder if having cancer has given me the ability to look around and take notice.  To appreciate those things that frankly might not be available to me at some point. I feel like I want to soak in all the reds, oranges and yellows in an attempt to truly appreciate the awesomeness of nature.  I hope so.  I hope I have been given this gift because looking up at the trees this week with the giddiness of a child, I feel lucky to be alive.

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The Last Apple Pie

I made an apple pie yesterday morning with my daughter. I let her roll out the extra dough and sprinkle cinnamon sugar on top then cut them into pinwheels. I used to do this with my mother and watching my little girl on that crisp Autumn morning,I was hit with a double shot of sadness and fond memories about my mom.  This was a relief because, since her passing 6 weeks ago, I haven’t really been able to conjure up remembrances of her; maybe it’s the chemo, my brain seems to be in a fog.  Below is a piece I wrote about her last year. Thanks mom for teaching me something that I can now pass on.

  The Last Apple Pie

 

       When my mother prepared her final apple pie she had no idea that one month later she would suffer a series of strokes and surgical operations.  When she cut the apples combining them with cinnamon and sugar she wasn’t aware that by the following Thanksgiving, the social worker at Braintree Rehab would recommend that we disconnect the stove in her apartment. There was no way for my mother to know that when she pulled the steaming apple pie from her oven on that chilly winter day that this would be the last pie she ever baked.

“Tell me again why you are doing that,” my Mother called out to my sister and I from her seat on her tattered pink couch, the day we brought her home from the hospital.

I looked at my sister Mary as I reached behind the stove to find the plug and disconnect it.

“Because, mom, the social worker thinks it’s a good idea,” my sister explained,” You still have your microwave to cook things, you don’t need the stove.  It’s dangerous for you right now.”

“Well, how will I make my pies?”

We had no answer for her.

 

 I discovered early in my childhood that the perfect apple pie depends on two elements: the consistency of the apples and the flakiness of the crust. They must coexist or the pie fails.

Mom never explained the logistics of how to make the ideal apple pie, I absorbed the information, poised at her elbow, while she peeled, cored, and pared.

“Macs and Cortland’s make the best pies,” she would mumble, as she cut with the skill of a surgeon, turning the entire peel into one continuous spring-like coil.

I discovered that lemon juice prevents the apples from browning and learned to measure with my eye the exact amount of apples and the precise size of each piece  needed  to ensure the correct consistency of the cooked fruit; which is midway between hard and applesauce.

I watched as my mother added a little vinegar to the dough to achieve a light and flaky crust.  When she rolled out the thick white mixture, I understood the importance of sprinkling plenty of flour on the table to avoid sticking and to roll the dough out from the center gently.  She worked efficiently as I reveled in the sounds of her rings clanking against the shaft of the rolling pin and her bracelets jangling against the aluminum flour tin.  

When I was 12, my mother took first place in The Shopper’s World Apple Pie Contest. Only she was surprised by this accomplishment. At our house, Mom’s pie was already illustrious; the contest merely a formality. Baked year round for holidays, friends, or Sunday dinner; each pie was as delicious as the last. There was never an “off” day for Mom’s apple pie. The panel had agreed, Mary Buckley’s pie was the best of the best.  Although she laughed it off when the judges called, I remember thinking it was one of Mom’s prouder moments.

After my father died, my mother moved into a one- roomed subsidized apartment which meant that she could no longer host holiday family dinners. Per her request, my husband constructed a Formica cover to fit over the sink in her galley kitchen. By expanding her counter space, she could still roll out dough, ensuring her continued contribution to holiday meals.

Mom’s apple pie is now legendary with my own children. Wide-eyed before every gathering, they inquire:

“Is Grammy bringing apple pie?”

“Of course,” I answer, while basting the turkey.

“Yippee!”

My kids are not impressed by the hours of house-cleaning or shopping, the time spent preparing the turkey, peeling the potatoes, glazing the ham, or mashing the squash.

They are impressed by pie. I am impervious to their ingratitude because I can still remember, as a child, pushing the ham and potatoes around my own plate, one elbow on the table, palm squished against my cheek, wondering when the adults would stop talking and bring out the dessert for God’s sake!  So I understand my kids’ excitement.  This is Grammy’s famous award- winning apple pie. Dinner is secondary.

Unfortunately, I was not thinking of apple pie when I agreed to unplug my mother’s stove and cover the burners with cutting boards. It didn’t occur to me that last Christmas when Mom walked through my front door carrying her steaming pie, wrapped in waxed paper inside an old Filenes’s box, that that was her final offering.

 If I had thought of her pie, while sitting in that stuffy Rehab office, then maybe I would have stood up to that social worker and told her that it was a far greater risk to take away my mother’s sense of purpose then the supposed threat of her burning down her apartment. If I’d remembered, I would have brought this woman a piece of Mom’s pie so she could taste for herself, the perfect apple pie. Maybe then she would have understood.

Posted in apple pie, cancer, mom, Uncategorized | Tagged | 3 Comments

Helpful Hints

 

 The next time you are in a park and someone in running clothes asks to use your cellphone to call their husband because that person just ran 3 miles to a soccer field to see her daughter play a game and since no one was there and she had just biked 24 miles and  didn’t want to run all the way home and potentially miss the game and she needs to find out where the game is, don’t look at her like she has just asked you to pay her mortgage or to give her your left kidney, just smile and say sure and hand over your phone.  You may even go so far as to offer her a ride, but I realize that may be asking way too much from society.

Also;

The next time you run into an acquaintance who is still in treatment for cancer don’t mention every other person on the planet that you know with cancer and how every other person on the planet that you know with cancer just “sailed” though chemo and looks “wonderful” and has a “fabulous attitude” because even though that all may be very true and very inspiring to the few left on earth without cancer it is somewhat irritating to those of us who do because although you are trying to be nice and supportive and sympathetic it’s almost like saying “Oh, Jane just sailed through that car crash she was in last month” because the truth is no one sails through chemo, it is a horrific, brutal shock to your system that really truly sucks while you are in it.  Yes people recover from it and come through, just like a car crash, but the memory will always remain and while they are “healing” nicely, they didn’t “sail” through  anything.  More like they rowed and paddled their way through chemo probably having to stop and bail the boat a few hundred times.

So maybe this Tamoxifen has made me a little irritable.  Do you think? Or maybe I have moved out of my “I have cancer and might die so the world is a wonderful place and everyone loves me so I should appreciate every minute” mode.  Maybe that’s it and maybe that’s fine.  That is a tough attitude to keep up for too long.  Completely unrealistic and frankly exhausting.  But I do feel better getting it off my chest.   

Anyway, if you have continued reading all that drivel you now get actual information.

 I will be going in Thursday to have two lumps under my arm surgically removed by my favorite surgeon,Dr. Christian.  He will send my lumps to be checked by the lab but hopefully they are just cysts.  It will be done under local anesthesia which is good in the fact that general anesthesia is tough on the body but the thought of that needle going in my armpit makes my toes curl.  So I won’t think about it.  I will let you all know the results. I am going to have to get in copious amounts of biking and swimming before the procedure since I will be out of commission for a little while, but I will try to check in here with you all. I’ll try not to be so irritable next time.

Posted in cancer, chemo, Uncategorized | Tagged | 2 Comments

One Down…

…One thousand eight hundred and twenty four to go.  Days that is, that I will have to take my new medicine.

I started my tamoxifen today  The pill that I will take daily for five years to kill the estrogen in my body that feeds the cancer. In case some of you are confused, my particular cancer is fed by 2 different receptors –estrogen AND the her2 protein– so I need two different treatments simultaneously.  The herceptin which is infused every 3rd week for a year, battles the her2/neu aspect of my cancer, and the tamoxifen suppresses the estrogen in my body to starve the cancer of that aspect. Understand? Good. I know it’s confusing, even for me who thinks about it daily.

The tamoxifen can cause some unpleasant side effects.  It’s a chemically induced menopause which I guess is more harrowing than regular menopause.  I don’t know yet, to me menopause sucks no matter how you get there. I already have horrible hot flashes –10 to 15 daily, so hopefully the ones caused by the tamoxifen will go unnoticed. There are other things, like weight gain and fatigue that I will fight with all my energy. I am already up 10 pounds from the chemo and damned if I am going to watch the scale rise even higher.

I understand that this medication can also cause leg cramps but I have just been reading the most fascinating information on the web.  It appears that if you place an unwrapped bar of soap between the sheets at the bottom of your bed, leg cramps virtually disappear. Seriously, Google it. I can’t wait to try it  I have been having sore legs and feet every morning from a combination of chemo, age and running so I am certainly going to try this.

There are also a host of scarier side effects like vision damage,stroke and blood clots that I will choose at this time to not think about.  After all, the percentages are low…hmmm where have I heard that before?

I saw my regular doctor today.  The one I used to see yearly before this whole cancer business began  It’s funny, I used to think she was so professional and “doctorly” but now that I have been visiting Dana Farber and the Brigham so often, my local doctor seemed kind of “down homey”. It’s like shopping in Nordstrom all year and then running into Old Navy to get a pair of jeans. It wasn’t bad though, it was just like I felt more at ease with her; less like she was on a pedestal.  So while I was there I asked for a test for ovarian cancer. I knew there was a test available but you had to ask for it –so I did.  Not only did I get the blood test, I am getting an ultrasound on Tuesday.  How’s that for excellent down home country doctoring.  I like it!  Well, I liked it until I found out that it was an ‘internal’ ultrasound. OH. OW. Maybe I was being too hasty in my pursuit of a cancer-free life..too late, it’s booked.

On another note, not to alarm anyone but on Friday before I went swimming at the Y, I noticed a lump under my arm on the same side that I had my mastectomy.   It is right below the scar from where they took out the lymph nodes. I’d be lying if I said I wasn’t quite nervous about this, but I have an appointment with Dr. Christian on Wednesday for a possible biopsy.  Here we go again. It seems that every time I start to plan my Craft Fair at Barrows, an annoying lump shows up on my body.  It could be many things so I will try not to project until I see Dr. Christian.  The good news is that I get to see Dr. Christian again. I have missed him.  I think I have a slight fatherly crush on him..you know…in a Johnny Carson kind of way.

Life is just different now.  Each ache, pain, bump,test and new medication is going to lead to anxiety for a long time to come. I am going to have to get used to it.  I have learned to be far more proactive in my health now.  I will not wait when I feel strange, I will ask for tests and call the doctor.  This is something that I didn’t do before cancer (BC). So this is a good thing. May I suggest that aproach to all my healthy friends who are reading this?  Don’t wait for something bad to happen to you…take care of yourselves now.

Posted in breast cancer, chemo, menopause, mom with cancer, tamoxifen, Uncategorized | Tagged | 2 Comments

The waiting Room

“I think you were right about the Taxol.”

 

These were the words that dropped from the mouth of my Oncologist as she finished examining me yesterday.

 

“Your breathing is fine now,,” she continued,”I think it was the Taxol that was causing all the problems.”

 

Ok, I’ll take that. It’s a slight salve on my pesky sore of regret but it still makes it feel better for a while. It was the Taxol causing my shortness of breath. Therefore I will take that to mean that I made the right decision…for now.

 

After meeting with Doctor Anderson, I proceeded to the 10th floor of Dana Farber for my third infusion of Herceptin. As far as chemo goes, this stuff is a breeze. It is so much easier now to sit in the faux leather reclining chair, my feet dangling just above the linoleum floor (these chairs were built for basketball players, I think) and be hooked up for a quick half hour.  No steroids or bucket loads of ant-nausea pills. No anxiety over reactions or nasty chemical smells. No confused brain and sore body. My infusion nurse knows who I am and gets me in and out.  As a matter of fact, yesterday she saw me on the 9th floor waiting for my doctor and told me she would pre-order my chemo from the pharmacy so it was ready and waiting for me when I got there. Otherwise it can be a long wait on Dana 10.  Each week I notice how the waiting room has become standing room only with cancer patients waiting for their chemotherapy.  This is either a sad statement about the prevalence of this horrible disease, or it is a hopeful sign regarding how far we have come with early detection and treatment.

 

There is a pecking order among the waiting patients. Each man and woman is at a different stage in both their cancer and their treatment plan. We wonder about each other. I used to walk off the elevator, bald headed, shaking with trepidation, my whole world revolved around the next three hours in the chair and I would see these women with short hair talking and laughing like they were at the nail salon; just a quick stop to re-fuel before they were on to something else. This is now me. I don’t have to plan out 8 days of misery after infusions anymore.  I go in, gas up, and am on my way; the remainder of my day is normal although I may take a few extra naps for the next couple of days).

 I caught a young woman yesterday peering at me from under her baseball cap  and I know she was wondering when she would feel better, when her hair would grow back. It’s an odd kinship we all feel with each other, yet there is also a sense of not wanting to infringe on someone’s privacy. It’s like being in prison; you want to ask everyone, “so what are you in for?” But just like you don’t want to hear the answer, “murder” from a fellow inmate, you don’t want to hear the person next to you say they have “end stage lung cancer”. It’s all a little too close for comfort.

So when I was being hooked up to my chemo drip, an attractive 60ish woman sitting across from me smiled over at me. She was surrounded by her 2 grown daughters and their babies. They moved about their mother while she was getting chemo, talking to her, distracting her with quips about the grandchildren. But this woman kept looking at me. She didn’t want to talk to her girls, who were obviously worried about her. She was just starting her treatment and to her I was a veteran. I looked like I had come through this war relatively unscathed.  She needed to speak to me.

“Your hair,” she said to me, “Is it a…cut?”

“Oh no,” I said, running my hands through my wiffle, ”This is what you call a hair-

grow.”

 

She touched her own hair, still intact, looking pensive. She asked if I was doing Herceptin for a year and told me she was beginning the Taxol and Herceptin combo.

 

“It’s good that you didn’t have to do the AC,” I told her,”that stuff is nas-ty.” I didn’t tell her that I took myself off the Taxol because of complications; she didn’t need to hear that, being a newbie and all.

 

She wanted to know more about the hair, though; when it started to come back, if I colored it, how long it had taken to get to its present military state. What she really wanted was reassurance.  She needed to watch me to make sure I was laughing and ok and not doubled over in pain or puking and that I looked somewhat attractive in my new “hair-grow”.  I hope that I was reassuring to her. I tried to be light and positive, not mentioning dour subjects like neuropathy and congestive heart failure.  I am sure she knew all that anyway. Sitting there in that overly sunny room we do whatever we can to pretend that what we are sitting through is ‘fine’.  We are women, raised to be strong and not complain.  And yet we do still need reassurance, which we seek out from those who have gone before us.  I am happy and proud to have been a comfort to this woman, as other strangers have done for me. And damned glad to be on the other side.

 

Posted in breast, breast cancer, cancer, chemotherapy, taxol | 4 Comments