The Seven Year Plan

Yesterday was Valentines Day. Never a favorite holiday of mine.  Partly because I believe it is a made-up Hallmark Holiday but mostly because it is the day after my birthday, which means everyone in the world gets to recieve flowers and candy and goes out to eat. My birthday feels like it is tacked on to everyone else’s special-ness.  Must be the same for Christmas babies. Growing up, my parents always gave me something for Valentines Day that I know was held aside from my birthday booty, just so they could give me something.  Never was this more evident than the year I got an unbrella for a Valentines Day gift.  Really?  An Umbrella?  I guess their love for me was evident in that they didn’t want me to get wet and catch a cold.

Valentines Day–the day of chocolates and jacked up priced roses and Prix Fix Dinners, when couples around the world show their love for one another.    As I am a deep-down-soul-crushing romantic, Valentines Day should make me happy.  But it just makes me sad.  It makes me sad because everywhere I look I see un-happy couples.  Most married couples I know are terribly dissatisfied with their marriages.  Many have left, most want to get out but don’t know how to, and some are resigned to stay in loveless partnerships.  What is going on?  Is it what happens when we hit our 40’s?  The kids are grown and now after 20 some odd years you look across the breakfast table at your partner and…yuck, who ARE you.  You are not the same person I married.  I am not the same person you married.  WHY are we still sitting here?

This scene is nothing new.  It has played out over the years in every household at some point.  I remember the night my mother told me that I would have to choose between her and my father as she kicked him out.  She always threatened to go but they always stayed together. They stayed for appearances sake and fear of the stigma of divorce.  After my father died my mother talked of their marriage like it was ideal…but we all knew better. Would they both have been happier if they had parted ways early on?  Would any couple be better off?

I honestly think that humans are not meant to be together as long as the bible, or the pope,or whoever it was that made up the rule that we are supposed to mate for life.  I believe that marriage should be treated like a business or a sports contract.  I believe that every 7 years both parties should come to the table with grievances.  If there are irreconcilable differences, or someone just wants to go, then that’s it.  The contract is dissolved.  Split the house, figure out the schedules, remain friends.  Since everyone else would be on this 7 year plan then there would be plenty of “free agents” around.  No stigma attached to the word “Divorcee” or dishonor involved from a “failed” marriage. No one hanging on to “spite” the other. Nope.  We just decided not to renew our contract.

Since both parties know that there is a time limit on this “contract” it becomes less likely that   one party will take the other for granted as the years go by. You’d better make damned sure you treat him/her right since he/she has the option of signing on with someone else.  You may listen more intently, you may put the toilet seat down, you may fill the Brita when it becomes bone dry.  You may do these things because you do love this person and the thought of them leaving you makes you awfully sad.  So you work a little harder at keeping them around.  You pay attention so you don’t wake  up one day after 25 years of marriage to a note on your pillow saying that she has found someone else more sensitive. Even though you could be that sensitive, you forgot, because it seemed like you had plenty of time to be that great guy…but time ran out.  With the 7 year plan, you always know that you can’t let things go too long.

Some might say that we have become a throw away society.  That no one is willing to work at their marriages.  I agree.  I agree that time should be spent on fixing what has been broken or rekindling what may have become lost over the years of diapering, and paying mortgages, but when that doesn’t work, when people are not in love anymore I say, move on. Find someone you do love; feel the butterflies again,be happy, let your partner go to be happy.   Love is everywhere and it is real.   It is not in a box of chocolates, or a card that was bought at the Paper Store on your way home from work, or in a $200 dollar dinner–it is in our hearts and we deserve to be happy.  You deserve to be happy.

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Will You Friend Me?

My family moved a lot when I was growing up.  Between 6th and 10th grade I lived in seven different houses in 3 different states and went to six different schools. Aside from leaving me a nervous wreck and very restless at times, this transience taught me one valuable lesson—how to make friends.  I became quite adept at meeting new people and making them like me, laughing at the right time, acting cool. I learned the subtleties of not seeming too desperate but being available enough so when I got the call to go out, I was ready to go. Because of this constant mobility, I also became quite proficient at leaving people behind.  It became clear that friends come into our lives and often leave for good.  I got very good at “moving on”…which, in certain situations, is quite necessary.

Most of our adult friends can be categorized; they serve different functions in our lives and apart for your very best friend who lives far away or your local best friend and the few go-to-pals who you can always call for drinks or tea or a good cry, most friends come and go throughout our lives as our interests change.

I have running friends—the people I do my races with.  We talk about race times and training and when our next race is.  I also have separate biking and swimming friends. I have the friends I met through my kids over the years—the parents of their friends, or through their sports activities.  These are the friends I can chat with at hockey games or school functions so I don’t look like a complete loser standing off by myself.  I have my concert buddies—those with the same taste in music as I have that will always go to a show when I ask.  I have my writing friends, my gym friends, and my work friends. All of these friends are based on a mutual interest and sometimes when that interest fades or changes, so too does the relationship.  It’s a natural progression, the ebb and flow of friends in our lives.

While I was going through my diagnosis, surgeries, and chemo, I noticed that I had lots of friends.  There was always someone at the door, ringing the phone, checking on my well–being, sending a thoughtful card, or delivering food.  Now that I am “better” those friends have receded back into the shadows of my life. I understand that this is exactly how it should be and is the nature of life  after any turmoil—eventually everything must go back to normal, but sometimes, I miss that part of being sick. I miss the company, the human contact that is painfully lacking in our new Facebook generation. Ironically, I am in touch with  many more people than I used to, but I spend far more time alone.

Facebook tells me I have 113 friends (which is quite low compared to others) and suddenly all these old friendships, which were essentially dead in the water, naturally purged, are bobbing to the surface.  It’s difficult enough most days trying to swim through this life but now here is Jane from grammar school popping up on your left, and look-out up ahead, its your old boyfriend from High School, and everywhere you kick its Bob from your first radio job and there’s that girl, oh what’s-her-name? –The one you used to get high with all the time? Facebook lingo dictates that these are my “friends”, when really many are old acquaintances or just plain old people that knew me when I was skinnier and didn’t have to color my hair.

But we left all of these people behind for a reason. Some of these friends were only that because they went to the same parties you did, or were on the same soccer team.  Some are simply friends of old boy-friends or kids you’d see in the halls whose basis of friendship at age 15 was pure and simple—no strings attached—“you like the Clash?  Me too.  Let’s hang out.  Maybe it’s someone who worked at the first job you had or a friend of a friend from College.

So now we are forced to get to know these people all over again.  These grown-up versions of the people we used to know. Which has turned us all in voyeurs. Don’t deny it.  If you have a Facebook page—you are a voyeur. This is how it goes: We friend someone or accept their friendship invitation, send them a brief note to catch them up on the last 30 years and then we watch.  We watch their status reports to see if they are funny, or serious, smart or quirky–to make sure they are political, but not TOO political.  We browse photos of their families and sometimes of their friends’ families.  Have they gained weight?  Do they look happy?  We discover that they have had some amazing careers, or lived through terrible tragedy.  If we like what we see then we send them comments, or just hit the “like” button if we don’t feel witty enough to reply.  Then eventually a new friendship emerges, very different from the original relationship, but a new one—quick, easy, convenient. Very little effort needs to be exerted.  I can learn about your life without actually talking to you.

But what about those ‘real’ friends we have –you know, the ones you actually go out with in person?  These relationships actually take some work.  Both parties are responsible for keeping communication open, making sure there is enough contact and learning when to talk and when to listen. These are the real friendships and the ones we need to work on cultivating so they won’t slip through our hands.  I fear for my children because they are growing up in an age when quantity takes precedence over quality—they are judged by the number of ‘friends’ on their page, quick hits are easier to make then a phone call, and texting is faceless and easier than listening to the disappointment in someone’s voice.  My kids will not learn the art of cultivating friendships like I did, because like everything else it’s been pre-packaged for them.

I don’t imagine that Facebook will go away—it seems as if it is here to stay.  And there is some good in it.  I have discovered a few unpolished gems among these old acquaintances.  These are people I never would have had the opportunity to meet again. What I find most fascinating is that there seems to be a genuine caring that emanates from these old friends, who knew me way back “when” before we had grown up, when the world was at our feet, and opportunity abounded.  We had dreams of where we would end up and ,whether we hit the mark or not, I find that their opinion holds a lot of weight with me.   Also, Facebook helps keep me in contact with family members who live far away—where a phone call would be impossible and expensive.

But as great as Facebook can be, I must remember that it’s the real friendships in my life that hold the most importance. I need to make sure that the bulk of my time is spent with my real-live friends—to be careful that I don’t become lazy and remember that friendships –real friendships—take a lot of work, and are well worth it.

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Time to Finish Me

I visited my old friend Dr. Plastic this week.  It had been awhile. Except for a brief sighting in the halls of The Brigham last month where I crooned like a fan-girl spotting my favorite rock star before Gina pulled me away (“oh, look…it’s him…”), I hadn’t talked to the good surgeon since last April. That’s when I was convinced that my silicone implant was leaching poison throughout my body slowly killing me or turning me into stone like Joan Rivers’ face.  He assured me that it wasn’t.  At that visit we did discuss the fact that he had made me a tad lopsided and would possibly need to re-do the entire surgery to give me a smaller implant to match my other side.

I don’t get the warm and fuzzy feeling from Dr. Plastic that I used to get.  Maybe it was the drugs they had me on.  Maybe he felt bad for me then. Now I am just another patient to him, one he can’t even really gouge for more surgery as I think these guys are required to perform a certain amount of mastectomies for insurance reasons. I had become an onerous obligation to him.  One he should have been done with already.  Otherwise, his real bread is buttered by the botox, boob-job, and butt-lift crowd.  When I entered the waiting room, he barely looked up from the receptionist desk as he and his gal poured over vacation spots on the internet; “See this one has 4 pools and a walkway to the beach.” Ack.

When he checked out my chest in the office, he was all business. We concluded together that I would not go ahead with replacing the whole breast again.  It would be too much surgery for me and he thought that the next size down would be too small. I have no problem with this since in nature we are all a little lopsided anyway.

“Just see how it goes,” he said as he closed my file and headed for the door.

“Wait.” I said.  “What about the rest of it?  So I don’t have a Barbie-boob anymore.”

“What?  Oh do you want….”

Don’t say it, I thought, not the word….

As many who know me are aware, there are a few words in the English language that I can’t handle. They skeeve me, make my skin crawl, and I have a hard time rolling them off my tongue.  Ointment is one of those words, the way it sounds, the connotation, the word itself.  Chipotle has also become one of my truly despised words.  To me it’s completely made up and you have to actually swallow the word to say it. It gets stuck deep in your throat.  I won’t even take my kids to the restaurant of the same name…and they know it.  “Oh don’t ask Mom to go to Chipotle, she’ll freak out.” Slacks, blouse, bosom, I have quite a few and thanks to my catholic upbringing many of which involve female body parts.  But one of the worst for me is Nipple.

Here  I was, faced with having to not only say this word but ask for a new and improved version of my old one.

“So you want to go ahead with the nipple replacement surgery?” he said.

“I guess so.” I said.  Ew.  Now I just wanted him to go back to his travel-agent secretary and stop thinking about my nipple and fast. But instead he was back sitting down telling me about how they would be taking skin from my ASS and making a, well, you know. And that I would be out of commission for 4 weeks.  Here we go again, I thought, just in time to begin my training for the Pan Mass.

“Schedule it with my secretary for some time in March,” he said, “I will be away in February.”

Ya, I know.

As much as I don’t want another surgery and am actually contemplating pushing it back until next year, I also want this whole thing finished.  I am starting to feel like the Golden Gate Bridge.  By the time they finish putting me back together and painting me up all nice, I will be falling apart and rusting somewhere else.  I also figure the faster I get this done, the faster I can stop having to find ways of avoiding the word I hate so much.  Like when my 16-year-old son asked me yesterday why I was having surgery, I said, “Umm, so they can make me anatomically correct.”   He didn’t ask any more questions.

Surgery is scheduled for March 11th.


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Ghosts

I began believing in ghosts at a young age. When I was a little girl I watched a Hall-Mark television Christmas special “The Littlest Angel” where a little shepherd boy named Michael–well known at the time for his role as Buffy’s sidekick Jodi on the TV show, A Family Affair–fell off a mountain while chasing a butterfly and he died.  After he was in heaven for a few hours, God let him go home to get his treasure box that he kept under his bed as a gift for the baby Jesus. After he retrieved the box, the boy watched his parents crying over the death of their son. He tried to reassure them that he was all right, but as hard as he tried, he wasn’t able to speak to them.  The frustration I felt for Michael/Jodi was so real—I was devastated that he could not communicate with his parents and it was then that I became certain about the existence of ghosts.   I became convinced that once you die your spirit can come and go as it pleases. I believe that spirits exist all around us; especially tortured souls who hang around trying to right a wrong or wander aimlessly in search of happiness.

It wasn’t until I was much older that I encountered my own ghost.  Mark and I were at a Bed and Breakfast in Vermont.  It was a cold late fall weekend and we had booked a room at the old farmhouse hoping for a few days filled with hiking and snuggling by the fire. As it is in many Bed and Breakfast type inns, often there is a communal bathroom – something I never liked –so I always insisted on a room with a private bath. This particular Inn only had one room with a bath available but it was an “Attic Room”.

Three flights up and we really were in the attic.  Sloped ceilings, cobwebs, gapped plank wood floors and all.  The tiny windows sat at floor level and looking at them from the massive four-poster canopied bed made me feel enormous, much like Alice in her rabbit hole. Across the room where the roof met the windows at the dormer, there was a rocking chair, which looked out onto a meadow replete with sheep, next to that was a small end table with an off-white dialed radio, circa 1950.  It was on this chair one morning that I encountered Amanda.

“Mark, wake up.”  I tried to prod him awake so he could see what I was seeing.  It was early morning, the mist was still on the sheep field and the light was just filtering in through the gossamer curtains, I shook my head and tried to clear my vision.  “Mark, there is a woman in our room.”

It was her profile I saw.  She sat in the rocking chair, straight backed and silent, looking out the window.  Her hair was up in a tight bun and she wore a floor-length dress.  Her hands—tiny delicate hands—were folded in her lap. She did not move; only sat and stared.

Thirty seconds passed, if that.  I hit Mark again.  “What’s the matter?” he said.

I pointed to the window, “There is-a-woman-sitting-in–that-chair.”

Mark reached for his glasses on the bedside table.  “Blind as a bat” some would call him.  Without his contacts or glasses he can’t see inches in front of his face.  I have always said that is why he married me, because he could never actually see how horrible I looked in the morning.

By the time Mark found his glasses and focused on the spot I was pointing to, the sun began to stream through the tiny dusty windows and Amanda was gone.

“It was probably just the light.” He said, rolled over and fell back asleep.

Later at breakfast I found out from the waitress that indeed I did see Amanda.  I learned that she had come to the farmhouse in a blizzard with her husband at the turn of the century and that she was pregnant.  I believe she died that winter, maybe in childbirth, I forget the particulars, but that she was so attached to this house that she refused to leave it.  In the breakfast room as word got around that I had seen her, I got lots of stories from the girls who clean the rooms:

“ I will go up to that room and fluff and straighten the pillows, and then I go back 10 minutes later and they are all a mess.”

“I always get in trouble from the owner because I will turn the heat down, I know that I do, and she keeps turning the thermostat back up.”

“Once a woman stayed in that room and her husband was far away in a boating accident, the woman claims that as she lay there she felt comforting arms enfold her and she knew that her husband was going to be alright—and yet she hadn’t been told of the accident yet.”

I squinted and sneered at Mark as if to say “SEE, I am not crazy, and I do NOT need glasses like you said.”
Needless to say, after breakfast I threw my clothes into my suitcase and high-tailed it out of there –cutting our vacation short by a day.  Amanda may have been a nice ghost but it was a little too close for me. At this point in my life ghosts were still a scary prospect –Ametyville Horror style. And again, like The Littlest Angel, a sense of sadness surrounded Amanda –a feeling of loss and an inability to communicate.

I am older now, and no longer afraid of ghosts. The ghosts from my immediate family, my two brothers, dad and mom have never revealed themselves to me.  I am always looking for my father and mother to show themselves to me; I would love to see them in a chair by my window, but it seems they have moved on.  Maybe that is good, maybe that means they have left nothing unresolved –with me at least.  I do often feel their presence when I am frightened or sad, a general feeling of someone watching out for me, which I still believe is what ghosts are supposed to do—keep us safe, like Clarence did for George Bailey.

Recently, it occurred to me that it is the living ghosts in my life that are far more disturbing than the spirits that hang around after death.  These living ghosts are the relationships that have ended, loves unrequited, friendships lost over petty differences or misunderstandings or people that I have just let slip away out of laziness. These are the ghosts that lurk just outside the periphery of my vision now. These haunt me more than any dead spirit.  These are real human beings and there is often great sadness in their losses.  Memories pass through my mind occasionally and I have clear images of times spent laughing with these old friends, or maybe I will see someone out of the corner of my eye as I walk down the street—is that them? No just a similarity.  Or maybe it was. But we don’t speak anymore. We can’t communicate – like the littlest angel and his parents—we exist on different plains. I suppose I could wait until we all pass on and hope that there is some great reconciliation that takes place in the after-life. Or I could continue to live with these ghosts as I have for many years.  I think instead, I will make a vow to myself in this New Year, this New Decade, that I will attempt to rid myself of these living ghosts. Maybe not all of them, but I can start with a few– I can make a phone-call, send a letter, learn to forgive.  Maybe then, with nothing left to resolve, my ghosts can move on.

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Happy New Hair!

I spent a lot of 2009 worrying about my hair. Yes it seems specious and petty to some, but for me, the growing back of my hair signified a return to health.  Every inch that grew on my scalp meant I was that much closer to being normal.  I started this year with merely a wiffle and I end it with my hair pretty much back to where it was before chemo began –albeit a little shorter and curlier but with help of a flat-iron it looks almost the same.

When I was bald, I wrote the following excerpt one day about my head:

My bald head is shiny and prickly at the same time. When I run my hand from my forehead to the back it feels as silky as a baby’s bottom but when I rub my hand back upwards to the scalp it feels as scratchy as a cat’s tongue.  It is ugly and beautiful and embarrassing and empowering. It screams to the world that I have cancer and it whispers to me at night that I may not survive. It is shapelier than some and tinier than most. There is no hiding under my bald head.  Every wrinkle, line, acne scar stands at attention on my face.

I am so glad I wrote this at the time because if I had to think back and write it now, I don’t think I would remember how I felt so vividly. It’s all just a distant memory now, and even looking at these pictures makes me feel oddly removed from the whole situation –like it happened to someone else.

Happy New Year and may  you all have beautiful healthy hair in 2010!

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Like Magic

The waiting room crawled with toddlers in tasseled GAP boots, and babies in tiny knit hats, and they were all smiling at us.

“They are so happy,” My 10-year-old daughter said to me as we waited for her Strep test. “Don’t they know they are at the doctors?”

“I guess not.”I said, “They haven’t learned to be afraid yet.”

“Aww, look how cute that little girl is.” She crooned, “Looks like I am the oldest one here.”

It was true.  I thought of the days when she was happy to crawl around this very same floor, chewing on books and banging at the Lego table.  Now she sat next to me, my confidante, nervous in her knowledge of the pain forthcoming from having a stick shoved down her throat.  She was growing up.

I thought how three days ago I put up on the mantlepiece the magical elf ,”Christopher Popinkins” ,who is supposed to stay with us from Thanksgiving to Christmas and magically “pop”around the house when the children aren’t looking. I was surprised when her usual glee at seeing Christopher, her excitement at the presence of Santa’s helper that would make her run around and shriek, was replaced by torpor. “Oh, yah,” she said. “Look at that.” Yawn.

I shouldn’t be so sad about the demise of this tradition since Christopher has caused me much anxiety over the past years.  Many nights I would come home  late and forget to move him and then wake in a panic when I heard little footsteps on the stairs.  At which point I would spring from my bed and rush past the kids, sometimes actually pushing them against the wall to get to the living room before they saw that the elf was in the same spot as the night before.  Sometimes I grabbed Christopher just in time to fling him high atop the christmas tree or up on the chandelier, but other days they were too quick for me.

Sad faced they asked, “Why hasn’t Christopher moved?”

And that’s when I should have had some moral dilemma regarding lying to children but instead said something like,”Oh he moved a few times while you were sleeping, I saw him in the kitchen and the playroom, he must just be back on the mantle by coincidence.”

Then there was the time when our new dog Carly had somehow jumped up and was chewing at him like he was a leg of lamb.  I walked in the house to screaming children,”Mom, WHAT are we going to DO????Carly got CHRISTOPHER! DO something!”

This called for quick action. You see, according to the legend, Christopher was not allowed to be touched or he would go back to Santa, never to be seen again.

“Ok, We have to cordon off the elf!,” I commanded.  I surrounded Christophers’ stuffed little body with three baby gates which we were using for the dog and I backed everyone away like it was a crime scene.  We stared for a little while not knowing what to do.

And then I lied again.

“Grownups can touch him.  Did I ever mention that?  It’s totally fine if a parent picks him up in times of crisis.”

And they bought it.  I replaced Christopher to his perch, higher this time, out of the reach of our elf-eating canine.

Since my daughter’s bored reaction the other day, Christopher hasn’t moved. And nobody seems to care.  My daughter’s belief in magic is sadly slipping away.

Back in the waiting room I watched a cool, hip young mom walk in with her 4-year-old son. Kneeling on the floor in front of the reception desk I noticed her slightly flared corduroys and her chunky boots,probably her favorites as  the bottom of the heel was worn away  on one side.  I remembered my favorite Doc Marten boots that I wore everywhere, replaced now by my more grown-up suede boots.   This young Mom was trying desperately to talk to the receptionist and fill out paperwork, while her energetic little boy jumped around in the chair chattering to her, “Can I have gum? Mom, can I have some gum? Gum, um,gum.  MOM I want some GUM!”.  She held one hand out to steady the boy and alternately said “hush” while she answered questions about her insurance coverage.

It was at that moment I became happy about my age.  Not in a “Thank God I don’t have to go through that” kind of way, but because suddenly I knew exactly what to do to help this woman.  Because, as a young mother, I NEVER would have interfered, I would have sat there feeling bad for her but wrapped up in my own insecurities and unable to move.  Oh I may have given her a sympathetic smile, but the young me would never have taken action.

See, I had raised 2 boys.  I knew what to do.  In the corner bookshelf I spied a book on Trains.

“Maeve,” I whispered, “go get that book and give it to him.”

“What? No way, Mom.”  Exactly how I used to think.

Without hesitation I retrieved the book and approached the little boy.  “Hey, do you like trains?” Of course he did.  As I knelt down so he could point out all the different cars to me and we talked about train-tracks and coal cars, his mother was able to finish her business. I had taken a chance that the woman would be pissed off that I had approached her son but she did not say anything–just smiled at me when she was finished.

When I sat down my daughter looked at me like she was noticing me for the first time, amazed at the magic I had just preformed on this little boy, “You-are- awesome-mom.”

And then I got it. It is alright that my kids grow up and lose their belief in elves and fairies and magic.  This is supposed to happen — but now it is my job to make sure that it is replaced  by their sheer and utter belief in human kindness.

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You’re Welcome

Maeve and I volunteering at the Elliott School in the North End

Now that I am my old self again — well, mostly, except for the plethora of scars that now adorn my body plus the new hair,  and half  a fake rack–  I have become tired of thinking about myself and my ailments, sick of focusing on my body and my health.  Whenever there is upheavel in our lives, be it health issues or the death of a loved one, we immediately turn inward and become self-absorbed.  This is not necessarily a bad thing.  I believe it is necessary for self-preservation. Grieving in any form is very taxing on body and soul and requires many hours of quiet reflection in order to heal.  But once the tragedy has passed or at least moved  to the recesses of our minds it becomes necessary to turn our gaze outward again.

So I joined the organization called Boston Cares.  This organization was started by a few grad students who thought people may not have the time or resources to volunteer at the same time every week so they set up a web site driven system where, after an hour-long orientation, volunteers can go to their site and pick and choose the projects they want to work on at their own convenience.  So I may be able to give 2 hours this month and 20 next month.  The wonderful part of this is that my kids can come with me and they get their hours tracked on-line as community service for things like CCD and high school requirements.  Not to mention it helps my narcissistic darlings  look outward as well.

These opportunities are anywhere from Lowell to Boston and run the gamut from working in soup kitchens to building playgrounds, folding clothes in warehouses to making recess books in the North End (see photo of Maeve and I).  I highly recommend this organization to anyone who is interested.  So many days I think that I am overwhelmed and unable to fit another thing into a 24 hour period, but you would be surprised how much you can help someone in 2 hours –and most of these projects are only that–a small amount of time that you may be wasting on face book or perhaps reading this blog!

Last year at this time I was thanking all of you for your help and support over the previous year.  This year I am hoping to start a new trend where I am available to others in need which will give me the opportunity to say “you are welcome” more often than I say “thank you.”

Happy Thanksgiving!

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One Life

I haven’t written here in a few weeks as I have been involved in tackling a writing class again, through Grub Street –a wonderful writing collaborative in Boston/Cambridge.

So I decided to write to you all today.  My topic will be, I am sure, one of the top blogged about controversies today.  Have you heard?  The are now recommending woman do not get a mammogram until they are 50 years old and then only be tested every 2 years.Globe Article Here

WHAT?

These scientists concluded that mammograms save relatively few lives in women age 40 to 49, and that this benefit is eclipsed by the risks, including tests that erroneously detect tumors when none exist.  They say that to save only one life  you would have to screen 1,904 woman in their 40’s and they consider that unneccessary testing (mammograms cost about $100).

I was diagnosed with breast cancer at age 44 so this is extremely disconcerting news. Which life do they decide is inconsequential enough to write off.  Mine?  I don’t think my children would agree that my life is not worth $100.  Maybe it’s not mine.  Maybe I would have been fine if I waited until I was 50 –what if it was you, or your sister, or your mother, or your girlfriend or wife.  Is their life the one you want to risk?

So let’s just say I waited until I was 50 to get  my first mammogram. I saved myself the agony of 10 mammograms, 10 half-hour tests, and they discovered that I had breast cancer then.  My cancer would have had 6 full years to grow and spread; 2,190 days to move it’s carcinogenic cells out to my lymph nodes where it would then take off like a wild fire throughout my body. That’s a long time –in 6 years I could get a lot done–and cancer cells can too.  The study showed that in holding off on the mammograms until age 50 we  would save 63 unnecessary biopsies. I am not sure you can call any biopsy unnecessary just because it comes back clean. How many skin lesions are biopsied for melanoma a day that do not turn out to be cancer?  If I am faced with something suspicious then I want to know either way.  I guarantee you wouldn’t find anyone who was disappointed that they had a biopsy come up negative for cancer.  Maybe the answer here is to train our doctors better in knowing which spots to biopsy…maybe this is a problem for the professionals instead of having it passed on –once again–to the consumer.

The U.S Preventative Services Task Force — that’s the puffed up name of this committee –I think I will rename my Family Activities committee that I run at the elementary school to the Family Activities Task Force.  It gives me more power and makes me sound smarter.  Anyway this Task Force has also claimed that self-examination is useless in detecting Breast Cancer at any age.

WHAT?

Come on!  I found my cancer in the shower and I can name 5 other woman I know that found there’s as well.  What do they want us to do?  They won’t give us the test and then say don’t bother checking yourself either..better not to know…wait until it’s really bad and out of control.  Don’t ask, don’t tell.

I did have a slight argument for the other side of when I first heard about this atrocity . That was solely based on the nagging feeling of denial I have –the feeling that maybe, just maybe I never really had cancer and that I went through this ordeal for nothing. I never looked through the micrscope so I never actually SAW that I had cancer, I have trusted the doctors along the way.  But this is not rational thinking, this is emotional bargaining.

As I am writing this I am getting madder and madder as  I realize that the ones who would suffer in this scenario is once again the lower middle class.  Because if the government decides that the guidelines are to get mammograms at age 50 don’t think for a second that woman in their 40’s with some money wouldn’t get the test and pay for it out of their pocket; leaving those without the funds lost in the shadows yet again.  Don’t think for a second that Michelle Obama wouldn’t  be tested.

And there is where our hope lay in this whole situation.  Luckily we have a strong woman as our first-lady, and I can only hope that she would never let this ridiculous recommendation get any further than that.

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Soccer Mom

DSCN0406

At a recent party, a well dressed gentleman approached me and asked me where I lived.  When I mentioned the name of my North Suburban Community, his reply dripped with condescension.

“Ooooh, my roommate from college lives in that town.  You’re a soccer mom….a yummy mommy”

It took all my reserve not to reach across my friend and strangle this stranger. Instead I immediately denied it, wishing I had a witty reply; which I didn’t, or could think of any reason why I might actually like this person; which I couldn’t. I stood there seething until I finally excused myself from the circle and headed to the ladies room.

Soccer mom. There are few phrases which ignite such ire in me, such loathing and hatred as being called a soccer or a hockey mom. Being accused of this makes my palms sweat and leaves a taste in my mouth like leeching amalgam.  I am not exactly sure why because, the fact is, my kids do play soccer and hockey, and I am a mom so what’s the big deal? The big deal happens when these two words are put together.  Placed together these two harmless words form a phrase that basically connotes you do nothing else but take your kids to games — that you have no other interests or aspirations in life.  I go to my daughter’s soccer games once a week and drop her at practice on Wednesday and Friday.  Same with my son.  If the games conflict I choose one or the other and my husband attends the opposite.  As far as hockey goes I make a few games but most are late at night so I am working or home with the other kids.  That’s it.  I don’t coach, I am not even the team Mother who makes the laminated cheat-sheet with the players names and numbers.

I have friends whose kids play football. As far as I can see, these parents are far more involved than soccer parents.  They have pasta parties the night before games, make sandwiches for the bus ride to out-of-town games, and spend all day Saturday on the Pop Warner fields — yet I have never heard the term football mom.

So soccer and hockey  takes up about 6-7 hours over the course of the week.  What am I doing the other 153 hours? Running, biking, working, scheduling doctors appointments, helping with homework,handling the finances, taking care of the dog,kissing boo-boo’s, making breakfast,lunch and dinner, writing,reading, mowing the lawn,volunteering at Boston Cares,making crafts, finding new bands,going to shows, putting out fires, starting fires, etc.etc. the list is endless.  Why on earth would I be pigeon-holed by a phrase that describes one tiny aspect of my life?  By someone who doesn’t know the first thing about me?  Remember this: Do not ever assume you know anything about anyone –make that your motto and live by it.

Ok, on to the second part of the well dressed gentleman’s insult.  He called me a ‘Yummy Mommy’. You’re kidding, right? Do men realize how pathetic they sound when they utter this preschooler’s rhyme.  ‘OOOH you’re a yummy mommy…aren’t you delicious…aren’t I cute, I can rhyme words,kind of come on to you, and insult you all in one breath…don’t t you want to sleep with me now?’ Come on –grow up!

These terms, invented by men, are made to keep woman down as they have for generations.  Reduce us to our menial tasks and our outward appearance and then we aren’t so scary.  Then maybe no one will notice how much smarter we are or how much we can actually accomplish in a single 24 hour period and look damn good doing it.  Now I am no bra-burning feminist and I appreciate a compliment any day of the week. I would love for you to tell me I am attractive, I have nice eyes, pretty hair, cute feet–whatever–DO NOT shrink me down to a label. If you do, you are an idiot.

Luckily this man did not continue his slow slide into degrading me by using the other term that just  makes the hair on my neck stand on end, the term that actually is thrown around by more 13 year olds than the word ‘fag’–MILF.  For those who don’t know what this means, MILF is an acronym for “Mothers I Want to F*#!#.  This is the mother load of insults and I find it most disturbing since it seems to be passed down from father to son with a slap on the shoulder, a wink, and an ‘atta-boy’.  Look everyone, little Joey is growing up to be as much of a pig as his old man!

So in the spirit of equality in all this suburban woman bashing I have decided to begin turning the tables. The next time I am called soccer mom I will smile and say why yes I do go to my kids soccer games because I like to show them I care about what they are involved in.  I will then politely list the other 90 things I have done that week until they are so bored they walk away. I have also come up with my own names for the dads around town and I plan to start using them…”Oooh,” I’ll say, “aren’t you a fatty daddy?”  Then I will turn to my daughter, pat her on the back, point and say “Look honey it’s a FILTH–‘A Father I’d like to Hang’.   Oh the fun we can have!


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Genetically Speaking

Twisted Sisters

Twisted Sisters

My sisters and I share many traits.  We all inherited light blue eyes and relatively straight teeth.  We share a sick sense of humor and a tendency to cry at the first sign of any form of sentimentality whether it be from within  our own family or from a Hallmark commercial.  We all unfortunately received short heavy legs from my father and a propensity to occasionally overindulge in food and drink, along with an innate sense of knowing when to help someone in need.

One thing we don’t have in common is breast cancer. So far my sisters have sidestepped that train, leaving me, the youngest with the notable position of being the first child in the family to have any kind of cancer.  Today, I took the first step in discovering if my breast cancer  was actually genetically predetermined or if it was mainly environmental.  Today I met with a geneticist who will test my blood to see if I have any alterations in two specific genes which would give me a greater risk of getting breast cancer again or of  getting ovarian cancer.

The two genes they look at are the BRCA1 and the BRCA2  (pronounced bracka one and two).  As you may  remember from biology class, we all receive a full set of genes from both our parents.  In each cell we have a gene from our mom and dad.  If , when they look at the DNA sequencing in the BRCA1 gene, there is an alteration, then I have a 50-85% lifetime chance of getting breast cancer and a 20-40% chance of getting ovarian cancer (the general population has a lifetime chance of 1-2% risk).  If they find an alteration in the BRCA2 gene, I also have a 50-85% chance of  getting breast cancer and a 10-20% chance of developing ovarian cancer.

Before they would actually  do the test, I had to speak with the geneticist and give a family history on both sides to see if the test was even feasible.  My mother did have breast cancer but it was not discovered until she was 60 –post menopausal–although we can’t be sure when she got it since she had NEVER had a mammogram before age 60.  She also had Colon cancer which she ultimately died from after it reached her liver but she was 83 at the time.  My father died of complications due to esophageal cancer and his family had forms of brain and lung cancer as well.  There is no history of breast or ovarian cancer in my cousins on my dad’s side.

This information alone was not tantamount to having the test done but the geneticist thought it would be a good idea in light of what I didn’t know.  My mother’s mother actually died when my mother was an infant and my mother had no sisters so we have no way of knowing the history on that side. It’s a bit of a mystery.

Ultimately the decision was mine to make. I already knew when I walked into Dana-Farber this afternoon that I would have the test done. It’s information I would like to have, for myself, and for my children, who would be at greater risk if they found the altered gene in me and it will dictate their future screenings.  For example my daughter would start having mammograms at age 25 instead of 35-40 since her mother had breast cancer and has a mutated gene.  There is a 50% risk that I would pass this gene to them as well.

For me it is a matter of knowledge and piece of mind.  If the test comes back positive for either of these genes than I may consider a prophylactic mastectomy on the other side or possible having my ovaries removed –which would alleviate many years of taking Tamoxifen since my estrogen would automatically be depleted.  If the test is negative, I sigh a sigh of relief and move on.  There is one other finding which is “inconclusive” — which I think may be the worst of the bunch.  I’d rather know one way or the other as opposed to getting the shoulder shrug from the lab.

It’s all quite amazing that this is even  in our capacity nowadays.  I know it is just the beginning –genetic research will be commonplace in years to come with home test like pregnancy tests that you can take in your bathroom.  For now though it is the insurance companies (again) we have to worry about.  This test cost $3500.00 and if my insurance doesn’t cover it, I am given the option of paying out-of-pocket.  Of course, I won’t.  I will pay a co-pay of up to $300 which is hopefully as high as they will make me pay.  I will know next week when the lab calls to tell me.

By law the insurance companies can not deny you coverage for a pre-existing illness and they can not deny you when they know you are BRCA positive.  Life-Insurance on the other hand can increase their premiums once they get this information, but I will worry about that later.  One worry at a time, here, let’s just see what the test tells us, then I can take it from there.  I will have the results in 2 week.

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