Three years Ago Tonight….

I couldn’t sleep.

I called old friends who I hadn’t talked to in a while; just in case.

I hugged my kids harder than usual.

I stared at my self in the mirror, and tried to imagine how my chest would look, afterwards.

I scanned the internet for pictures of mastectomies and stalked on-line chat rooms reading about complications that could happen in surgery.

I laid out my clothes for the morning drive to the hospital and packed my bag with the special bra they had given me to wear after the surgery, a shirt that buttoned in the front, and my fleece slippers.

I prayed to my Dad to keep me safe.

I wasn’t allowed to eat or drink anything after midnight.

I still thought that maybe it wasn’t really happening to me and that someone had made a terrible mistake.

Three years ago tonight, my life changed forever.

 

 

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On the Grace of God and High Horses

Once upon a time there was a little boy named Cody. (I am working under the assumption here, that the reader understands that ‘once upon a time’ predicates that what you are about to read is fictitious–a compilation of many different kids simply used as examples).Cody lived in an upper middle class suburb with his parents and his four siblings of various ages. Up until a few years ago, Cody was a happy, well adjusted kid who played in the neighborhood and went to school on a regular basis. But then Cody’s Dad lost his job  when the economy went south and his mother has been trying desperately to juggle the bills on a zero income budget. Cody’s parents are dealing with other problems with Cody’s siblings so he is somewhat left to his own devices on most days. As things got worse at home,  Cody began to retreat into a world of fantasy and anger–emulating the world around him.  He was suspended from school for carrying a knife into his middle school building.

Susie lives on the other side of town. Susies’ parents are recently divorced and her mother was just diagnosed with lung cancer. She hates spending time at her Dad’s apartment because she doesn’t particularly like his new girlfriend but since her Mom is so sick with her treatments it is necessary for her and her little brother to sleep at her Dad’s more often. Sometimes Susie cuts herself ‘a little bit’ just because it makes her ‘feel better’. Susie skipped class a lot and spent many of her high school hours in the girls bathroom, away from the inquiring eyes of the teachers, who Susie thought hated her as much as her Dad did.

Joey comes from a 2 parent-2 job family that from the outside seems quite “normal” . Joey is an only child, who spends a lot of time alone because his parents both work late hours. He is very lonely and gets scared in their big house but wants to feel like a man so he never tells his parents about his fears and would usually stay up very very late until they got home. Joey ‘s parents were called in because Joey was continuing to fall asleep in his 5th grade class and not doing his homework.

———-

My mother had a saying among her repertoire of cliches–”There but for the grace of God, go I”. This she mumbled quite often over the years. She would say this whenever she saw a fellow human in despair, down on their luck, someone worse off than herself. It’s really just a fancy way of saying “better you than me.” Oddly, she had enough of her own problems to fill a whole church–dragging seven children through adolescence she saw her share of drugs, alcohol, car accidents, skipped school, police visits, fights and failures. Enough that would have given our neighbors reason to mumble their own form of thanking God when looking at our house.

When I was first married, before I had children, I was adamant about how I would NOT raise my children.  I preached to my childless friends that I would do it differently than my own parents, and how other parents I knew were wrong in their approach. I would be aware of my kids at all times, always there for them and ever-present to their needs without spoiling. When my first son was born, I thought I had it all figured out. I would pay attention to everything he did, take him places, expose him to museums and culture, keep him busy, love him, hold him accountable–basically do everything, RIGHT. Sleeping? Well, only lazy parents let their kids sleep with them. Eating? Only fresh home-made baby-food for me. Diapering?  Cloth of course.

This is a wonderful ideal, and exactly, I believe, what all new parents set out to do.  And honestly it’ s easy to stay under this umbrella of maternal righteousness until life gets in the way. By the time my second and third child came along my kids were eating french fries in their Pampers as they crawled into bed with me.

And then they grew up. Just like the old ladies in the grocery store, who would stop me to coo at my little baby, said would happen. ”Oh just wait, you think it’s hard now? Wait till they grow up?” And they’d walk away with a knowing look on their wrinkled faces. “Yuck,old people.”

But they were right.   These little kids that I could mould and pursude, grew into super-sized teenagers with ideals of their own, often quite different from mine.

At some point over the years as my kids grew I changed my attitude from thinking I was the only one who did it RIGHT, to thinking I was the only one who did it WRONG. There were times, looking around, when everyone elses kids seemed to be on the right track while mine were still waiting at the station. Extracurricular activities began to pile up in my attempt to keep up with the Jonses, and the Smiths, and the O’Mally’s.  ”Why can’t you be more like, Timmy,” I’d say, in an attempt to guilt my son into joining the debating team in his spare time between hockey, work, and school.  If Timmy can do it why can’t my son? His parents must be doing something right. Why were their kids so focused and mine were not? Why is my daughter so rude to me when her little friends seem so nice to their own moms? How come Judy’s house is spotless and mine is a mess?

The danger in this kind of thinking lies in it’s opposition. If I allow myself to believe that others are doing it right and I am wrong than my only chance at survival is to seek out parents who are doing it even WORSE than I am. Look for those families in crisis whose kids are being singled out for “bad” behavior, so I can justify my own parenting skills.

Luckily, not only did my kids get older, so did I. And now I have become like those yucky old ladies in the grocery store. But here’s a grand secret–with age comes wisdom–great comforting wisdom that creates peace within.  My wisdom has come in the knowledge that parenting skills are not singular–there is no Right way to do it, every household situation is different. I have learned over the years that all kids will eventually screw up. Now or later. And that it is a dangerous proposition to assume yours will be the only one that doesn’t.

So because we, as young parents, all  started out with the perfect parenting ideal and set our sights ridiculously high in our attempts to do better than our own parents did, when things don’t actually work out as planned, it’s devastating. I see our generation doing two things:

If our own family is in  crisis, we close the curtains and try to deal with it quietly without asking for help. We are ashamed of our failures–many of which are just life beyond our control. The same crap our parents had to deal with, but we thought we were better and stronger than they were so we hide our heads in shame.

If, on the other hand, we are at a point when things are running smoothly (and guaranteed that won’t last forever) than we justify everything we have done right by how well behaved and perfect our children have become–thanks to our perfect parenting skills.

But what about Cody and Susie and Joey? What happens to them?

What happens is that the well intentioned parents of the other students decide that their own kids should not hang out with these children because what if the bad behaviour is contagious and  un-does all their perfect parenting. So Cody and Susie and Joey are shunned and closed off and become insular when their behaviors were originally intended as a plea for attention and help.  Now they become even more alone and distant. The Codys, Susies, and Joeys of the world serve a grand purpose–they give the parents of the “good” kids a reason to say “aha, see, my kids aren’t THAT bad.”

There is much suffering and struggle that goes on behind your neighbors’ curtains.  It’s time to start knocking on doors and offering help. It’s time, as my mother would also say, to “get off your high horse” and show some compassion for other’s who are having a hard time.  It’s easy to sit back and judge other’s for their missteps, much harder to put yourself out and make a simple phone call. It’s quite possible that what you fear might work in reverse, that your own child’s good behavior, that you have worked so hard at maintaining, might actually rub off on someone else in need. It’s time.

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Now, Listen to this!

At the end of every year I search music sites and publications for their pick of the top alternative albums of the previous year. Usually I am in agreement with their lists and often I find new bands that I hadn’t listened to previously. I am always on the lookout for amazing new alternative music. Even though I have been out of the business for many years, I continue to actively search out new bands to listen to and see live.  Not only do these bands have to grab my attention, they need to hold it. The test of a great album for me is first it’s uniquness and musicality and second that I never, ever skip over their tune when it comes up on shuffle.

There are those, like my 17 year old, who are passionate about classic rock–The Who, The Stones, Led Zepplin–and although I totally appreciate those bands for what they have done for us in the past, I have always been more interested in the newest and greatest. There is so much innovative new music being made every day and much of it is unexposed to the general public.  Thanks to the internet though, we now have wonderful avenues to explore this new stuff  by listening to Pandora Radio or many independent stations like Houndstooth Radio and Newnormalmusic.com. or LostFm.

I am forever wanting to share my love of these bands with my friends in hopes that they too will feel the passion I do when I listen to these gems. So here I present my Top 5 albums that have held my attention for the last year that I think you should own or at least pay close attention to.

1. Frightened Rabbit–The Winter Of Mixed drinks : I saw these Scottish lads twice this year and their CD is on repeat in my car.  If you only take one of my suggestions, take this one.

2. Florence and the Machine– Lungs. Although this album came out in 2009, I started listening, really listening last January. When I saw her preform at the Paradise I was blown away. The fact that someone so young (26?) can have such a powerful voice is mind boggling. Since last January Florence has been getting quite a lot of press and has crossed over to the mainstream, which is usually a kiss of death between myself and a beloved indie band, but I find it hard to walk away from her as she is so amazing and deserves all the accolades she receives.

3. Matt Pond PA–The Dark Leaves – Matt Pond has released 7 albums since 1998 but this year is the first I have heard of him or his Philadelphia based band.  The album is beautiful, lush, and upbeat. I never skip over Matt Pond.

4. Hey Marseilles — To Travel and Trunks :

Mix these lyrics–

“On the way I will go ,Where the days left to breathe,Are not gone, are still long,I am traveling on”–

with viloins and accordians , guitars and claps and you have a band that has captured my heart.  I missed seeing them live before they headed to Europe but I have been told they put on an amazing show. One I will not miss in 2011.

5a. Sleigh bells– Treats The newest addition to my list of albums I can’t get out of my head, this Brooklyn duo rocks harder than what I have been listening to lately.  But there is something about Sleigh Bells that gets under my skin. Their combination of heavy guitar and  lilting vocals just, well, slays me.

5b. The National — High Violet Because I can’t make a compilation without  these guys and because the album came out this year and because I think everyone should know about The National and because his voice makes me smile and cry at the same time…

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Letting Go

Icicles. Growing up, my sharpest memory regarding the Christmas season revolves around icicles. Not the frozen sharp eye-threatening weapons that hang from the corners of the gutters, but the shiny tinsel-like icicles that we used to put on our Christmas tree. The ones my mother bought in bulk at Woolworth–usually no less than 25 boxes per year–to ensure that the tree sparkled and twinkled continuously as they reflected the light.

As kids we were given a box at a time and instructed to gently pull them from their cardboard fastener and drape them over our hands like a fancy waiter in a a five star restaurant. We were expected to drape each single solitary  quarter inch thick strand of aluminum over the branches, ONE AT A TIME with the precision of a surgeon.  My father had shown each of us before we could walk the exact way to start at the inside of each branch and, one by one, layer them out to the end where they hung in perfect unison. ‘Make sure they are even’ , he would say.

This icicle placement was fun at first. I always felt extremely important and grown-up that my parents allowed me to do this meticulous work.  That feeling lasted about two and a half minutes; once I realized that my mother and father were no where in sight, off drinking tea or scotch, while I labored over the task.  Every so often they would poke their head in to make sure I was doing it correctly. This was the first time(but not the last) I actually wondered if they had a  camera in the living room since every time I tried to put 4 or 5 at a time on the branch in an effort to quicken the process, they would walk in.

‘Tsk,Tsk. Look at that, no, Franny, ONE AT A TIME.’

After what seemed liked hours facing the tree, I looked down at the stack of cellophane wrapped  boxes with their windows that displayed the sparkly tinsel, and they seemed to multiply–how could there still be so many to put on? It was growing dark outside and I could smell dinner cooking and I would squint my eyes and watch the icicles sparkle as the lights came on the tree, my waiter-arm feeling heavy; my stomach growling.

At some point I needed to go watch Gilligans Island or Bewitched or Rudolph and always abandoned the job after a few boxes. Though I never saw her do it, I am pretty sure my mother would come in and finish the job since the other 23 boxes were always strategically placed before Christmas arrived.  Maybe she did what I did when no one was watching and threw handfuls haphazardly at the tree…but somehow I doubt it.

As an adult I don’t put icicles on my tree.  As far as I know none of my brothers and sisters ever did. We were all a little scarred from this torturous exercise. If you ask my siblings they all roll their eyes in unison remembering the stress put upon us at what should have been a fun and frivolous time–stress put on kids because of their parents control issues.

Although I have alleviated the stress of icicles over the years I have had my own control problems at the Holidays. Shopping, cooking, cleaning.  I always wanted the house to be picture-perfect when my guests arrived and instead of reveling in my kids toys and enjoying the gifts in the morning, I would jump up and start yelling “hurry up, put this stuff away, we need to clean before everyone gets here!”

The tree itself was always a control thing for me as well.  I had to have the perfect tree.  I remember the first year in this house I wanted a bigger tree to accommodate the higher ceilings in my new house and ended up buying a second tree after the first one was up. I made sure the decorating was supervised very closely so that the large bulbs went up top and the homemade ornaments were evenly distributed around the tree.  I would re-arrange the decorations when my kids weren’t looking.

But this year something miraculous happened. I was working every night leading up to Christmas–either at the restaurant or for the catering company(and of course that silly 2 day trip to Disney thrown in there)–so I never had time to get a tree. As difficult as it was I had to trust my husband and son to pick out the tree and put it up.. ..and – it – was – fine.  The tree was as good as any I would have picked out so I took it one step further.  On my way out to work the next night I said,”Go ahead and decorate it, guys, I gotta go to work.”

And so they did a great job.  I added a few ornaments when I got home, but I did not rearrange and most importantly I did not criticize.

So I woke up the next morning and decided  I would incorporate that attitude to the rest of the week and right through Christmas day. And amazingly everything got done–there may have been a little more dust in the corners and the wrapping was a little haphazard, but Christmas came and went anyway. It was a nice christmas, with no yelling or stress and the first year I didn’t throw out my back from tension build-up.  If something didn’t get done or wasn’t perfect, well, nobody noticed.  What I hope was noticed was a sense of calm and well being that my kids will remember and someday write about.  I hope their sharpest Christmas memories are not a meticulous decorating task but rather a warm feeling of holiday spirit.

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The Elephant in the Room

I didn’t know Elizabeth Edwards personally. I know that she was courageous and brave and that she wrote books just like I hope to do some day.  I didn’t pay too much attention to the drama with her political husband as it seemed like Tabloid fodder– a  steroidal version of local town gossip.  But I did pay attention to her cancer diagnosis.  Diagnosed with Breast Cancer in 2004; recurrence in 2007; death in 2010.  This one hits close to home.

Every time I hear of someone passing from cancer I hold my breath while I ask ,”what kind?”. It is difficult to explain what happens inside me when I find out the diagnosis was breast cancer. Those who have had breast cancer understand. Those who don’t, I hope you never understand.

Yesterday as my husband was standing at the sink rinsing out coffee cups, I said to him,

“Did you hear about Eizabeth Edwards?”

“Who?” he said. “Oh right.  She died didn’t she?”

That’s when the elephant came out of the back room where he has been eating peanuts and staying out of everyone’s way. His giant ears perked up when he heard the words ‘breast cancer’, slowly he pushed himself off his back legs and lumbered into the kitchen where he sat–not so gracefully–between my husband and me.

No one mentions it because it’s silly really. I have beat the cancer, right?  No sense even comparing. But Elizabeth beat it too–so she thought, and 3 years later it returned. The elephant looked right at me when he heard that one.  My 3 year diagnosis anniversary is this Friday, we both know that. Then he takes out his tiny calculator, if I go the same way then I am looking at 3 more years from this point to live.  I will be 50.

While the elephant and I stared wide eyed at each other in silent panic, my husband continued to wash out cups. I am not sure he even noticed him sitting there as he turned and walked away.

This part of having cancer is not getting easier. This feeling of my mortality so close to the touch.  Last month I threw my hip out and was in some intense pain.  I was afraid that I had a stress fracture which would impede my running for a long time but I was more afraid that the cancer had returned and was settled in my hip bone.  When I mentioned that possibility to a friend, they looked at me like I was crazy.”Why would you think that?” they said.

“Why wouldn’t I?”

That’s what happened to Elizabeth and that’s one of the prime sites that breast cancer will metastasize to. They found a spot on her rib, her lung and her hip.  And once the cancer travels, well the outlook is grim.

I went in for an x-ray and discovered my hip problem was a tendon/muscle pull and although it’s still killing me, I am thanking God that it wasn’t what I suspected.

In a couple of days the elephant will return to the back room where he lives a quiet existence. I would like to release him and let him find somewhere else to live but he seems comfortable here for now.  Most of my friends and family don’t notice him at all when they visit.  I am the only one who knows he’s there–especially when it’s quiet in the house and there is no one around and I am left alone with my thoughts and fears.

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The Best Laid Plans

I spoke to my older brother yesterday to tell him what time I would pick him up for Thanksgiving.  It was a call I dreaded. Not because I dislike my brother who has struggled with mental illness and depression for years, but because I had promised something I never followed through on and I was afraid that he would be angry with me.  I had promised back in June that I would come to his tiny subsidized apartment in Lowell and give it a good “spring cleaning”. I was going to replace the nicotine stained curtains, scrub down the walls and replace the fraying rug. We were both excited with the prospect of his new and improved living space. My brother has very little and this was a gesture that would bring great joy to his somewhat lonely existence. But I never went. I let the Summer turn to Fall and made excuses when I thought about it and got busy and then it just got too late. When he answered the phone yesterday he sounded genuinely happy to hear from me.

“Hey Franny, how’s it going.”

“Great Bri, listen I am sorry about not getting over there to clean, yet.”

“Oh that’s ok, I figured you weren’t feeling well.” Of course he thought that.  He has always worried about me, his little sister, since I was diagnosed with breast cancer. Brian always made time to call and find out if I was ok.

“I feel terrible that I never got there to clean. I didn’t mean to disappoint you.”

“Don’t worry about it.” he said as graciously as he could.  How could he be so accepting of this, I wondered, when I was so horrible about handling disappointment in my own life? Why do I get so upset when things don’t go my way?

I have lived through quite a few “real” disappointments in my life–like the death of my father and two brothers at young ages or the fact that I moved to a new town every 10-18 months throughout junior and senior high always right about the time I was settling in, not to mention the loss of my youth and body parts due to cancer. After enough of these major life disappointments  I seem to have become immune to death,and sickness and change in location, losing friends and loved ones with an heir of acceptance. The major blows I can handle–leaving no room  for the minor disappointments in my repertoire of coping skills.

When looking for a new home years ago when the market was red-hot and if you didn’t place a bid higher than asking price as soon as your foot hit the threshold then most likely you would lose it; my real estate agent told me to never picture my own furniture in someone else’s house so I wouldn’t be upset when I didn’t get it. But I didn’t take his advice.  Each house I entered I could imagine how my wooden bench would fit perfectly in their kitchen-nook and ,oh, wouldn’t my couch look lovely under that sunny window. And I am still doing it today.  Although now it’s with those that I love. I am the furniture and I picture myself in different scenarios surrounded by friends and family.  Whether it’s a simple lunch with a friend or a night out or a weekend away with my family where everyone gets along. I forget to take into account that other’s may have their own plans.

As I get older, my circle of close friends has narrowed considerably in direct relation to the widening of my  expectations of their loyalty and love for me. I find myself getting my hopes up about spending time with the ones I love–people I want desperately in my life–and when they are too busy for me, I become extremely disappointed. So when a friend can’t meet me for lunch or isn’t home when I visit I am heartbroken. Because in my mind I had things worked out just-so.  Last Spring I was hoping my best friend and her family would join us on a trip to South Carolina.  I got my hopes up so high and pictured all the fun our families would have together that when she finally told me no (which took some time because she didn’t want to disappoint me), I was crushed and angry.

As an adult I should have learned by now how to handle disappointment. Instead, a constant battle rages between my grown-up mind and my child-like heart . My brain does realize that I have no right to be angry at the other person for letting me down.  Since usually it is not they who have let me down but my own mental furniture moving that has gotten me into the predicamanet in the first place. But my heart acts out so when things don’t work out for me I sulk and feel sad and rejected for a while until I talk myself out of the destructive self-pitying that doesn’t do anyone any good.  At the same time I am trying to teach my children to handle disappointment. “It”s fine” ,I say when they don’t make the ‘A” team in hockey or soccer. “Pick up and move on” I say when my son realizes his bum knee will handicap him for life.  I want them to learn how to handle such things knowing full well that I, a 47 year old woman, still struggles with it.

There are solutions to this problem, but none of them sound enticing.  My disappointment revolves around people I care deeply for, who I want to spend all my time with. I am never disappointed by aquaintences or those I hold at arms distance in my life.  Only the few I have let sneak into the inner circle of my heart.  I suppose I could stop letting people in. But I would have to let the others go as well. If I stand alone, then no one can hurt me.  Just like when my oldest son was about 6 years old  and he stopped accepting balloons at birthday parties and carnivals.  When someone offered him a balloon he would say,

“No thank you, I don’t like balloons.”

But I knew he loved balloons.  It’s just that he had lost one too many to the windy skies or popped them on sharp objects and he had told me that he was never going to get a balloon again because it was too sad when you lost it. I don’t want to do that.  I don’t want to stop accepting balloons or let loose the ones that fill my heart just because they may disappoint me. It’s a jaded and cynical way to live. I think I would rather enjoy the beauty and happiness of spending time with those that I love and suffer the disappointment when things don’t work out as planned.  The alternative feels  too lonely.

I don’t want to stop making plans either. If I don’t ask anyone to be there for me then they can’t let me down.  Again a cynical view.  One I am not willing to adopt.  I think I would rather continue to make plans and get excited about things that “might” happen even though sometimes they may not work out exactly as planned. I’d rather continue to buy balloons and fill up my imaginary house and take the risk.

Because I know, deep down, that those that I love mean well–like I meant to do well by my brother. Eventually I will clean his house.  He knows that.  He trusts me. So I must learn to trust the ones I love, and like my brother, graciously accept that their true intention is never to disappoint me–only that life gets very busy and sometimes with a little patience on my part things may work out even better than I had planned.

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A Process

Aging is a natural process. Everything we do and everyone we lose adds moments to that process. Getting married, watching our children grow, losing our parents. We can’t stop it, it’s inevitable.

I remember crying one day when I was pregnant with my oldest son–16 years ago. I told my husband that I did not want to have children because their mere presence in my life would age me.  I thought that by focusing on my child’s developmental growth, I would lose track of the years and my life would fall by the wayside. A lot of my panic at the time was the hormonal mood-swings of pregnancy but there was a bit of truth to it as well.  Obviously I grew older as my children did and yes I lost myself waiting for them to walk, and talk, and ride a bike, but it was gradual enough and I was busy enough for years so that  I didn’t notice. It’s only now, looking back at pictures do I see how youthful I was back then and I can compare it to where I am now. Older, yes, wiser, definitely.  They do not exist independently.

With my children out of the baby stage there are now other reminders of my own aging.  Two years ago the death of my own mother and last month with the passing of my Mother-in-law, Virginia.  Virginia was an incredible grandmother, no better could you hope for, she remembered their favorite candy every visit, she knew about sports and how to engage a teenage boy and of course was very gentle without being condescending to my daughter. She was a beautiful woman through and through.

Although I have only had one Mother-in-Law I am pretty sure I lucked out in that department.  She was caring without being intrusive; she somehow found a way to let her opinion be known in such a way that was acceptable, and she was usually quite right in her perceptions.  I am  sure she held her tongue far more than she let it wag and when my sons get married I can only hope to follow her lead. And although I didn’t have the kind of relationship with her that boasted of daily phone chats, I knew she always understood me and I certainly knew she always had my back in any conversation that may have led to disparaging remarks about her daughter-in-law.

And now she is gone.  My children are grandparent-less–which I don’t think of as devastating since I lived my entire life, grandparent-less. I feel that they are indeed lucky to have had any grandparents at all, but to them it is a horrible fact that they throw onto the table at various times.

When my kids say, “I have no grandparents, now”, I am instantly transported to a recurring conversation I used to have with my own Dad sitting at the kitchen table;

“I am an orphan, you know,” he would say.

“No you’re not, Dad, you had parents at one point.”

“Doesn’t matter, they are both gone, and now I am an orphan.”

Well, I guess I must be an orphan now, too, which really sucks because the word itself conjures a sense of being alone and on your own in a big scary world. That’s exactly what happens when both of your parents are gone. You are in a sense alone in a big scary world.  There is no one to call when you are not quite sure how to handle a teenager with a new license, or a middle child’s insecurity, or God help me a pre-teen girl and all her dilemmas. The generational layer that laid above me, protecting me with their knowledge and wisdom has been ripped away. There is no hierarchy, anymore, they have moved on.  Now it is up to me.

Had I been a little more organized I would have thought ahead.  I should have made a giant list, as long as Santa’s, with questions to ask my parents and in-laws. Questions regarding future years, about when my daughter reaches puberty and my sons get married. There are questions about my own childhood that I never asked–like ‘did you hate me when I was a teenager?’ Or everyday questions like how Virginia made that amazing roasted lamb or what it feels like to turn 50. I would have kept this list in my desk drawer, categorized like an encyclopedia, referencing it daily. Since I was not that organized, my only hope is to try to remember the wisdom the previous generation has instilled in me and try to recall as many facts and advice that I can. I will  encourage my children to start a list, to ask me as many questions as they can and write them down–questions for me, their protective layer.

 

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I Confess…

…I have not been writing.  Here or anywhere else. .  It would be easy to blame my lack of creativity on outside events like work,school, sports schedules, funerals, car disrepair, or financial upheaval. But that is a cop-out.  I should not be waiting for inspiration, I should be seeking it out actively in the routine, the mundane, the ordinary. Instead of letting life kill my inspiration I should be looking closer at the world around me.

See, I have officially entered the Post Cancer Stage. And look at me–I am fine. Just fine. But fine is so boring. No one aspires to be “fine”. If they did you certainly wouldn’t hang out with them. Unfortunately what comes along with “fine” is a settling into routine.  Somehow between driving to soccer and hockey, filling out PTO forms, and making dinner I have forgotten about how precious life seemed 2 years ago when I thought it might be stolen from me. I have lost my edge and though I desperately want it back, I certainly don’t want to go back to the days of cancer and chemo. I have met people over the years who need that edge constantly.  These people  can’t  handle the ordinary so they create drama and tragedy to justify their existence.  When there is no more tragedy in their own lives they seek it out in others.  These people are exciting to be around at first, but quickly become exhausting.

But routine can be exhausting too. Lacing up my sneakers for a run this morning, I was feeling tired and irritated that  I had to go running– conveniently forgetting the past few years and  how wonderful it felt to run after each surgery and how excited I was for the doctor’s OK to get back at it. But  now I am back to running 5 days a week and there is no reason not to run –no surgeries or chemo or swollen appendix. As I left my house and headed up Summer Ave, I was tired and hunched over and thinking of all the things I had to do when I got home. A hotter, more humid than usual Autumn day today,  I started to feel the weight of the past few weeks heavy on my shoulders.

Right when I was thinking I would turn around and go home, an incredibly refreshing breeze blew straight at my face. It was perfect, not too strong as to impede my forward motion but strong enough to cool me off.  I continued my run and it seemed every time I got really hot this breeze blew at me.  As if I were running behind a flatbed truck with an industrial fan set on 4 minute intervals. Eventually I anticipated these breezes and stood up straighter to catch the full effect.  At one point I lifted my chest and opened my arms out wide in an attempt to capture the fresh air into my lungs.

I could have just run like I do every other day and not paid much attention to the wind.  It was innocuous enough that I easily could have taken the breeze for granted.  But somehow today that breeze lifted me up and gave me the strength to continue. An ordinary breeze. Yes.  It’s just nice when you actually stop and realize how much these short bursts of air can give you the strength to get through the ordinary, mundane, sometimes harrowing daily routine.

So I began to think of all the breezes in my life.  My breezes blow in as a bear hug from my teenager while I try to make supper, a cup of tea at a kitchen table with my best friend, a comforting voice on the telephone, or a picnic under an oak tree with an old friend.  Quiet and strong they fill my lungs with air and carry me through even the most boring day. They let me know that “fine” can be awesome and the mere fact that I can appreciate them is enough to keep me on track.  I am blessed to have them and will cherish these breezes with open arms from now on, savoring every one, never taking for granted the simple beautiful moments in my life. A fine life, after all.

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“I Want So Much To Live”

I was lucky enough to see this new documentary at The Boston Film Festival this week called “I Want So Much to LIve”.  It is a beautifully done film about the invention of Herceptin.  This short film  highlighted the young scientists of Genentech who made it their mission and passion to get this drug perfected and approved.  It was these young kids in California who figured out that something was odd in the breast cancer world; they wanted to know why after treatment some survived and some didn’t.  They figured out that 20% of all breast cancers were fed by the her2 protein and then went about finding an antibody for it.

As I was diagnosed to be her2/neu positive in 2007– 4 years after Herceptin was approved– I was lucky enough to receive this drug.  The story touches on the women who were not so lucky, who wrote letters pleading with the drug companies to let them have this new drug that was available. The film explained the clinical trial process and how a drug gets pushed through the FDA–giving us both sides to the story and showing how there was no real ‘bad guy’ because everyone was working toward the same goal–finding a safe and effective drug against breast cancer.

What struck me most about this documentary was the unbelievable commitment of these scientists to prove that Herceptin was worth the company’s time, money and effort.  They knew in their hearts that this was an important step in helping to cure cancer, and they would not take ‘no’ for an answer.  It also amazed me that it was only in 2003 that this drug finally became approved, and that had it not, I would be in a very different situation right now.

You should definitely see this film if it comes to any of your cities. It made me feel like all the walks, runs,and bike rides we do to raise money for research against all cancers is actually doing something.

Here is the link to the film’s website index.html

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Jars of Clay

My Mom, Mary Buckley, died this week 2 years ago. She was an incredibly strong person who dealt with many tragedies over the course of her life.. This was a piece I wrote about her for a Grub street class last year.

Jars of Clay

When you fill a clay jar with too much water, eventually it will crack.  It is not noticeable at first, you can’t see the corrosion inside but over time there are small outward signs –the texture changes and there are slight variations in color.  Until one day the vessel cannot hold and eventually breaks wide open. The day we buried my brother, Michael, I noticed the first sign that my mother’s jar was overfilled.

It was her eyebrows.  They were purple.  I stared at them across the kitchen table long after the mourners had left the wake, while my brother, sisters and two nieces chatted.

“It was a long day,” my mother said, tendrils of smoke escaping through the side of her mouth, “I can’t believe how many people were there. They just kept coming.”

Next to her, my sister-ln-law, Paula, moaned, excused herself, and left the kitchen.

In the eyes of our family, my brothers’ widow had not handled the day very well. Paula had spent the entire wake screaming and gnashing, throwing herself across the open casket, oblivious to her own 8 and 10 year-old daughters’ pain. Understandably, her husband had been taken from her by a drunk-driver, the day after Christmas, but our family had already buried a brother and had lost our father less than 2 years before – we were grief veterans and we wore our badges with dignity and honor. We were taught well by our mother to be stoic in the face of tragedy—never let them see you lose control.

But I saw.  I knew that she had taken careful steps that morning –picking out her classiest black suit, ironing the cream-colored Lord and Taylor blouse.  Matching her belt to her patent leather sling-backs.  This was important to her. She needed to prove to friends and family that she was stronger than anything this life could throw at her. Carefully, like a movie star in her dressing room, propped on the pink stool of her vanity, she applied foundation and mascara and then drew in her eyebrows; painting a perfect arch –not too straight, not too curved.  But in her grief, my mother had reached for the wrong pencil. Instead of the brown eyebrow pencil she always used, she grabbed a purple pencil used to line the under eyes.  When that was done she put on her pink lipstick and then with a straight back, stood up and left to bury her 34-year-old son.

To tell her would have been too much.  I feared that the embarrassment of having been around so many people with purple eyebrows would have been the final drops that destroyed her well sealed jar of dignity– feared that her jar would completely disintegrate.  So I just stared at her face, and said nothing.

It was my brother’s 10-year-old daughter, who finally spoke up,

“Grammy she said, “why do you have purple eyebrows?”

Everyone stopped talking and looked at my mother.

“Look,” said my niece, showing her a mirror.

She stood and walked to the hall.

“And none of you people told me?” she spat, turning an accusing eye on me.

“Um, well, I really didn’t notice,” I lied.

I know that internally my mother was mortified, because later in the car she lashed out at me, but that day in front of everyone, she did not dissolve.  She held fast and strong proving that my mother was made of far more resilient material than clay.

My mother stared at the mirror for a few minutes, composed herself and then spoke to her  granddaughter.

“I think it was your dad’s favorite color.”

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